The Little ME Book

What You See is Not How I Feel is a visually simple overview of how living with Myalgic Encephalomyelitis (ME)* feels. It opens conversation, clears misperceptions, and encourages understanding. Appropriate for children, adults, and professionals.

* Also known as Chronic Fatigue Syndrome(CFS) and Systemic Exertion Intolerance Disease (SEID)

I went way past my energy limit today. At 3:30 pm my head is filled with ear-splitting ringing. My feet and calves are tingling and burning; I feel tight bands squeezing my ankles. At the computer, I feel like I’m being tipped backward in my chair. My head drops back, I jerk it upright. I should be lying down, but needed to write this. I will pay for it tomorrow.

Anderson’s book is a must read for anyone that knows or works with people with ME. It brilliantly illustrates and explains her experience in a way that one is able to comprehend what is experienced daily.

Dr. Pamela Kryskow, MD, CCFP, Pain Specialist

A simple, charming and effective way to communicate the enormous, life-altering challenge of having an invisible chronic illness like chronic fatigue syndrome (ME/CFS). Illustrations helpful for anyone with this and other chronic diseases that limit even the ability to communicate and read due to debilitating fatigue, brain fog, pain, and other symptoms. It is presented in an inviting, non-blaming, non-shaming way that invites others to get a sense of what it means and how to be supportive.

Veronique Mead, MD, MA

In this deceptively simple and compassionate book, Anderson has managed to make visible the invisible realities of what people with Chronic Fatigue(ME) live with every day. I would recommend this book to all people living with Chronic Fatigue(ME), their family, friends and health professionals. For those living with CF(ME) it will feel like a huge relief to finally have someone put into words what are often wordless and difficult symptoms to describe. For everyone else it will open your eyes and hearts to how CF(ME) robs a person of their life and vitality.

Eva Dicasmirro, Physiotherapist and Somatic Psychotherapist, specializing in trauma resolution and chronic illness


Paperback: 978-0-2288-1968-4
eBook: 978-0-2288-1969-1
Hardcover: 978-0-2288-1970-7